Opened 772 days ago
Closes 1 January 2023
Trial/Study Aim Description
Collect and measure information about what it is like for patients living with neurological conditions, and identifying factors that influence patient quality of life (some of which may be typically underestimated), to expand and improve health services and support, as well as work towards more personalized care. Investigate genetic factors that may contribute to risk and progression of MND.
Participants must be living with MND, complete and return a questionnaire pack twice a year and provide a DNA saliva sample once.
Principal Investigator: Professor Sulev Kõks
Enquiries Email: firstname.lastname@example.org