Perron Institute’s TONiC (Trajectories of Outcomes in Neurological Conditions) researchers are now recruiting people with Parkinson’s to participate in this quality of life and genetic study. The objective of the study is to improve our understanding of how genetics can impact patient progression and quality of life, eventually helping researchers and clinicians improve patient care and therapies.
Originated in the UK several years ago, TONiC is one of the largest studies into the quality of life of patients suffering from neurological conditions ever undertaken. It was envisioned by Professor Carolyn Young from the Walton Centre in Liverpool.
Parkinson’s disease (PD) isn’t the same for every patient. Patients will progress at different rates, or experience certain symptoms that affect their day-to-day life more than others. These differences can change the way people cope with disease progression, as can a patient’s personal characteristics or social context. Genetics likely also play a part in why disease progression can be different between patients, but more research into this is needed.
With the assistance of funding from MSWA, Western Australia will be the first site to implement TONiC for Parkinson’s disease in the hope of improving care for patients and identifying genetic contributors.
Professor Sulev Koks – Murdoch University and the Perron Institute – is leading TONiC WA. The TONiC WA study will collaborate with the UK team.
By collecting and measuring information about symptoms, disease genetics, and factors that have the greatest impact on patient quality of life, we hope to expand health services and support, as well as work towards more personalised care